The BEES Support Group was formed in 1992 by a parent who has a daughter with Bladder Exstrophy. She recognised that there was very little support and almost no information in the public domain for a condition that affects very personal things in the life of the individual with Bladder Exstrophy or Epispadias. In 1995 the group became a registered charity.
BEES is staffed by volunteers whose children are affected by the condition and adult patients. Our staff are fully trained and attend regular conferences. BEES has very good links overseas, especially throughout Europe and North America.
Here are some of the comments from people we have helped over the years.
